|Posted on March 11, 2017 at 12:15 AM|
I am a mom of children with disabilities and disorders. Now don’t get me wrong. I know moms with children that have a harder time then we do. I’m not discounting their struggles, stresses, or strength. This is what I am experiencing on my journey.
My toddler is deaf (socially correct “hearing impaired”). My 6 year old has been diagnosed with ADHD and has been tested for hearing loss that determined there is a dip in his hearing (not enough that he needs hearing aids). All of which have been inherited. We just recently found out that my husband may be on the hearing impaired spectrum. I sometimes feel as though I am the only one who is truly the impaired person in the family. I feel like the odd man out.
To be honest, I feel frustrated that I am the only non-hearing impaired person in our family. The toddler has limited vocabulary and communication isn’t always easy. We have been working on teaching what little ASL we know, which is not much. Baby sign language helped us with our son who didn’t start fully talking until he was almost 2. Even then he was hard to understand.
I find myself apologizing and explaining that they have these less than normal qualities. This is the way God made them. Why am I apologizing for who they are? These are things I cannot control. Our little girl was born deaf. Hearing loss is more common than a lot of people realize. Some people don’t even report it in fear that it would make them less accepted into their environment, whether it is at work or home.
-About 20 percent of Americans, 48 million, report some degree of hearing loss.
-About 2-3 of every 1,000 children in the United States are born with a detectable hearing loss in one or both ears.
-Almost 15% of school-age children (ages 6-19) have some degree of hearing loss.
Being “hearing impaired” has not stopped the toddler in anyway. She is the most independent, loving, caring, brave, strong, loud, and stubborn little person I have ever met. We meet once a week with a speech pathologist to work on communication. She is very smart and does real well in therapy. She is almost 2 and has only been walking for a month. She is moving (speaking) at her own speed and that is so frustrating for me. It is frustrating for me to not know what she wants or needs. I have to continue to ask for the reminder that she will get there and how far she has come along. It is like watching a flower bloom. You have the ones that blossom quickly and then there is that one that takes its time opening up and showing its full colors.
I love my children. I love who they are and I thank God every day for the blessing of having them in my life. It isn’t always easy, but life isn’t meant to be easy. How would we grow if life was easy? I’m working on my personal growth, learning how to better communicate with my children, and to not let the things that are out of my control, control me.